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How to Help Your Elderly Loved One in Pain

American Chronic Pain Association Toolkit for Older Adults with Pain material-Professionals

Associations, education, support groups & books

Chronic Pain Associations
Co-Dependency
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Mental Health
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Support Groups
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National Consumer Pain Organizations

American Chronic Pain Association - offers support groups and a variety of useful materials for people with pain. Also leading a public awareness campaign called Partners for Understanding Pain.
PO Box 850
Rocklin, CA 95677
http://www.theacpa.org

American Holistic Health Association - dedicated to promoting holistic principles: honoring the whole person (mind, body and spirit) and encouraging people to actively participate in their own health.
PO Box 17400
Anaheim, CA 92817
http://www.ahha.org/

American Pain Foundation - Working to improve the quality of life of people with pain by raising public awareness, providing practical information, promoting research, and advocating to remove barriers and increase access to effective pain management. Has on on-line interactive "Pain Aid" with discussion and message boards.
201 N. Charles St., Suite 170
Baltimore, MD 21201-4111
http://www.painfoundation.org/

The Mind-Body Medical Institute - dedicated to research, teaching, and clinical application of mind/body medicine and its integration into all areas of health, especially stress management.
824 Boylston Street
Chestnut Hill, MA 02467
http://www.mbmi.org/

National Chronic Pain Society - provides peer support groups for people with chronic pain and their families. They are provide current, accurate information from quality professional through their quarterly newsletter.
PO Box 903
Tomball, TX 77377-0903

National Foundation for the Treatment of Pain - provide support for patients suffering from intractable pain, their families and friends.
P.O. Box 70045
Houston, Texas 77270-0045
http://www.paincare.org/

National Health Information Center - a health information referral service that puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers.
PO Box 1133
Washington, DC 2001-1133
http://www.health.gov/NHIC

National Pain Foundation - provides on-line education for pain patients and their families including information about pain disease, treatment options, and links to support groups.
300 E Hampden Avenue, Suite 100
Englewood, CO 80113
http://www.painconnection.org/

Web MD - source for timely health and medical news and information. Providing credible health information, supportive community, and the ability to browse a comprehensive directory of over 4,000 diseases and conditions. Site includes message boards, newsletters, and live events.
111 8th Ave
7th Floor
New York, NY 10011
http://www.webmd.com/

National Professional Pain Organizations

American Society of Pain Management - a national multidisciplinary pain society that provide credentialing to practitioners in the are of pain management. A good source for complementary and alternative practitioners. Offers information on finding healthcare professional and programs.
13947 Mono Way #A
Sonora, CA 95370
http://www.aapainmanage.org/

American Academy of Pain Medicine - a national organization of pain physicians promoting quality care of patients with pain as a symptom of disease and primary pain disease through research, education, and advocacy and through the advancement of the specialty of pain medicine.
4700 W. Lake Ave.
Glenview, IL 60025
http://www.painmed.org/

American Alliance of Cancer Pain Initiatives - national organization that promotes pain relief nationwide by supporting the efforts of state and regional pain initiatives.
1300 University Avenue, Room 4720
Madison, WI 53706
http://www.aacpi.org/

American Pain Society - a multidisciplinary pain organization serving people in pain by advance research, education, treatment and professional practice.
4700 W. Lake Ave.
Glenview, IL 60025
http://www.ampainsoc.org/

American Society for Pain Management Nursing - an organization of professional nurses dedicated to promoting and providing optimal care of patients with pain through education, standards, advocacy and research. Local chapter listing on website.
PO Box 15473
Lenexa, KS 66285-5473
http://www.aspmn.org/

American Society of Regional Anesthesia and Pain Medicine - Addresses the clinical and professional educational needs of physicians and scientists; assures excellence in patient care utilizing regional anesthesia and pain medicine; and investigates the scientific basis of the specialty.
P.O. Box 11086
Richmond, VA 23230-1086
http://www.asra.com/

City of Hope Pain/Palliative Care Resource Center - Serves as a clearinghouse to disseminate information and resources that will enable other individuals and institutions to improve the quality of pain management.
City of Hope Pain/Palliative Care Resource Center
1500 East Duarte Road
Duarte CA 91010-3000
http://www.cityofhope.org/prc

Institute for Noetic Sciences - conducts and sponsors leading-edge research into the potentials and powers of consciousness--including perceptions, beliefs, attention, intention, and intuition. The institute explores phenomena that do not necessarily fit conventional scientific models, while maintaining a commitment to scientific rigor.
101 San Antonio Rd.
Petaluma, CA 94952
http://www.noetic.org/

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The Mind-Body Medical Institute - dedicated to research, teaching, and clinical application of mind/body medicine and its integration into all areas of health, especially stress management.
824 Boylston Street
Chestnut Hill, MA 02467
http://www.mbmi.org/

National Health Information Center - a health information referral service that puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers.
PO Box 1133
Washington, DC 2001-1133
http://www.health.gov/NHIC

Preventative Medicine Research Institute - a clinical research organization dedicated to conducting trials that examine the effects of lifestyle choices on disease
Dean Ornish, M.D.
900 Broadway, Suite 2
Sausalito, CA 94965
http://www.pmri.org/

Pain Related to Specific Conditions

Arthritis
Arthritis Foundation - The Arthritis Foundation is a national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.
http://www.arthritis.org/

Back Pain
Back Pain Association of America - Has written materials; quarterly newsletters; six support groups in Northeastern U.S.; WILL refer to specialists/spine centers nationwide.
P.O. Box 135
Pasadena, MD 21122
(410) 255-3633
(410) 255-7338

Cancer Pain
American Cancer Society (ACS) - a nationwide, community-based voluntary health organization with state divisions and more than 3,400 local offices. ACS is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major heath problem by preventing cancer, saving lives and diminishing suffering from cancer through research education, advocacy and service. Provides 24-hour hotline.
http://www.cancer.org/

Cancer Care Inc. - provides written material, telephone support and counseling, and will locate other community services in the patient's area.
http://www.cancercare.org/

Oncolink - the first multimedia oncology information resource placed on the Internet. Oncolink was founded in 1994 by Pennsylvania cancer specialists with a mission to help cancer patients, families, healthcare professional and the general public to get cancer-related information at no charge.
http://www.oncolink.org/

American Alliance of Cancer Pain Initiatives Resource Center (see above)

Chronic Fatigue Syndrome
American Association for Chronic Fatigue Syndrome (AACFS) - promotes the stimulation, coordination, and exchange of ideas for CFS research
http://www.aacfs.org

Headache Pain
American Association for the Study of Headache (AASH) - a professional society of health providers dedicated to study and treatment of headaches.
http://www.painmed.org/

Interstitial Cystitis
Interstitial Cystitis Association (ICA) - is a not-for-profit health organization dedicated to providing patient and physician educational information and programs, patient support, public awareness, and research.
http://www.ichelp.org/

Multiple Sclerosis
National Multiple Sclerosis Society - offers written material, support groups, and physician referral through local chapters.
http://www.nmss.org/

Orofacial Pain
American Academy of Head, Neck and Facial Pain - focuses on the diagnosis and treatment of TMJ.
http://www.aahnfp.org/

American Academy of Orofacial Pain (AAOP) - offers a TMJ brochure for patient's online.
http://www.aaop.org/

TMJ Association, Ltd. - offers written material, 29 support affiliates and a hotline that refers patients to other patients.
414-259-3223

Peripheral Neuropathy
Neuropathy Association - a non-profit organization established by people wih neruopahty and their families or friends to help those who suffer from disordes that affect the peripheral nerves.
http://www.neruopathy.org/

Reflex Sympathetic Dystrophy Syndrome Association (RSD/CRPS) - has written material, about 100 support groups nationwide, and sill send its list of physicians in the patient's area.
http://www.rsde.org/

Shingles
VZV Research Foundation - offers written information on Zoster/Shingles pain.
http://www.vzvfoundation.org/

Sickle Cell Disease
Sickle Cell Disease Association of America, Inc. - offers printed materials and list of physicians in patient's area.
http://www.sicklecelldisease.org/

Vulvar Pain
National Vulvodynia Association - a nonprofit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders.
http://www.nva.org/

Pediatric Pain
The Candlelighters Childhood Cancer - educates, supports, serves and advocated for families of children with cancer, survivors of childhood cancer, and the professionals who care for them.
http://www.candlelighters.org/

Pain and Addiction
American Society of Addiction Medicine - a medical specialty dedicated to educating physicians and improving the treatment of individuals suffering from alcoholism and other addictions.
http://www.asam.org/

End of Life Pain
American Pain Foundation - see above
http://www.painfoundation.org/page.asp?file=EOL/Intro.htm

Complementary and Alternative Medicine
University of Pittsburgh Complementary and Alternative Medicine Homepage - a resource for complementary and innovative therapies. Updated regularly
http://www.pitt.edu/~cbw/altm.html

American Academy of Pain Management - see above

Oregon Health Sciences University - a comprehensive complementary and alternative medicine website resource list including academic institutions, journals, organizations, specific therapies, and general links.
http://www.ohsu.edu/ohmig/cam.html

National Center for Complementary and Alternative Medicine (NCCAM) - at the National Institutes of Health, Offers general information about complementary and alternative healing practices.
http://www.nccam.nih.gov/

M. D. Anderson Cancer Center's Complementary/Integrative Medicine Education Resources - a website that contains evidence-based reviews of complementary of alternative cancer therapies as well as links to other authoritative resources.
http://www.mdanderson.org/departments/cimer

Rosenthal Center for Complementary and Alternative Medicine - a website that contains CAM approaches to cancer and women's health as well as general CAM information.
http://www.cpmcnet.columbia.edu/dept/rosenthal

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